Returning genetic research results: study type matters
نویسندگان
چکیده
منابع مشابه
Offering individual genetic research results: context matters.
The disclosure of individual genetic research results to study participants continues to be the subject of vigorous debate, centered primarily on the nature of the results. We suggest that research context, which is foreseeable when a study is designed, is a vital consideration that has not been sufficiently incorporated into the discussion. Adapting an ancillary care framework to explore what ...
متن کاملFive principles: returning genetic testing results to research participants.
In recent years, genomic testing has become increasingly common in both research and clinical trials, sparking a debate over whether and how genomic testing results should be returned to research participants. In the past, many institutional review boards required that the consent form research participants sign must stipulate that they would not have their genetic results returned to them. How...
متن کاملReturning Genetic Research Results: Considerations for Existing No-Return and Future Biobanks
A pressing issue for the genetic research enterprise—and an issue that has important implications for biobanks—is whether researchers should share, or “return,” the genetic research results with the individuals whose DNA they studied.1 With some exceptions, researchers typically have not returned genetic research results to the biospecimen donors.2 One reason for a no-return policy is that rese...
متن کاملAn Update to Returning Genetic Research Results to Individuals: Perspectives of the Industry Pharmacogenomics Working Group
The ease with which genotyping technologies generate tremendous amounts of data on research participants has been well chronicled, a feat that continues to become both faster and cheaper to perform. In parallel to these advances come additional ethical considerations and debates, one of which centers on providing individual research results and incidental findings back to research participants ...
متن کاملReturning pleiotropic results from genetic testing to patients and research participants.
Multiple recent guidelines and recommendations, in both the clinical and research realms, call for reporting of genetic information (including incidental information) that is clinically useful to patients and research participants and suggest it is appropriate to withhold information that is inaccurate, not actionable, or could potentially lead to harm. Although based on sound ethical principle...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Personalized Medicine
سال: 2013
ISSN: 1741-0541,1744-828X
DOI: 10.2217/pme.12.109